NDY takes great strides to help combat cystic fibrosis
Last Sunday, approximately 2,000 joggers, walkers, kids and even family pets, descended on the Royal Botanic Gardens with a steely determination to beat their personal best time around the infamous ‘Tan’ running track. But they also brought with them a greater purpose: to raise valuable funds for Cystic Fibrosis Community Care (CFCC).
CFCC is the peak community not-for-profit organisation working with and for people with cystic fibrosis (CF) across Victoria and New South Wales.
CFCC provides information, support and guidance to people living with CF and their families. It advocates for services and systems that support the CF community and seeks to raise awareness, understanding and funds for services and research.
CFCC CEO Ms Karin Knoester says, “As more than 70% of CFCC income is derived from fundraising, we rely heavily upon the generosity of the public as well as private philanthropic sources. CFCC is striving towards lives unaffected by CF, but we can’t do it alone. It takes a whole community to care for and conquer CF”.
NDY was one of the corporate sponsors for the Great Strides event and backed this up with a contingent of eager participants.
The combined efforts of the team at CFCC, sponsors and participants raised $125,000. These funds are critical to help CFCC with research and for practical support to those living with CF.
CF fast facts
1. CF is the most common, inherited, life threatening condition affecting young Australians. There is currently no cure.
2. Despite major advances in treatment, the average life expectancy for someone born with CF today is just 37 years.
3. 1 in 25 people in Australia carry the recessive CF gene – that is one million Australians. 94% of babies diagnosed with CF are born to parents with no known family history of the disease.
To find out more about CF and see how you can make a difference, visit www.cysticfibrosis.org.au/vic/